A Kirklees mum had “so little hope” after her daughter died from a brain tumour.
Susan Mountain, from Roberttown, Liversedge, West Yorkshire, was left heartbroken when she lost her 13-year-old daughter Maci Craddock. Maci was told she had a with an aggressive, fast-growing childhood brain tumour in August 2017. Just two months later, she sadly died.
Susan said: “Could you imagine hearing that if this was your child? We had so many questions, and so little hope.”
There is no cure for DIPG brain tumours in children and very little funding into research, Yorkshire Brain Tumour Charity (YBTC) said. The average survival rate is just 8-12 months, and fewer than 10 per cent of children survive two years beyond diagnosis of DIPG.
After her daughter’s tragic death, Susan set up ‘Team Maci’ in a bid to help other children and families battling brain tumours. The charity have raised over £23,600 for Yorkshire’s Brain Tumour Charity alone, raising even more for other local charities.
Susan Mountain has been nominated for two Yorkshire Choice Awards in recognition of her fundraising efforts for local cancer charities including Yorkshire’s Brain Tumour Charity. She has been nominated for ‘The Kate Granger Award for Outstanding Contribution’, for people who have gone the extra mile to make lasting contributions to others, and ‘Inspirational Individual of the Year 2023’, for people who have shown extreme courage and determination.
Susan said: “There has been no change in treatment in the last 40 years. Could you imagine hearing that if this was your child? We had so many questions, and so little hope – we want to change that so that no family has to go through what we did.
“We have fundraised tirelessly to raise money for support for children and families like ours, but to also fund vital research.” She added: The tissue bank allows scientists access to children’s tumour tissue for research, giving hope of finding a breakthrough to thousands of families.”
Jennifer Aspinall, Regional Fundraiser at YBTC, said: “Susan and Team Maci have been instrumental in the research YBTC has funded, and are the reason that the charity became involved with re-instating the Leeds tissue bank.
“We are incredibly grateful to Susan and her family for their phenomenal fundraising, and are so pleased to hear about Susan’s well-deserved nomination in recognition of her hard work supporting small charities like ours.”